New Normal

>> Friday, July 13, 2007

I've spent the last week in the hospital with our soon to be son, Nate. He has a rare neurological disorder called schizencephaly and his brain isn't allowing him to swallow correctly. As a result, he's aspirating into his lungs. Since it's no longer safe for him to eat he needs a feeding tube which delivers food directly into his stomach. Today was our first day home and we spent the day trying to get used to feeding Nate through his tube. It's amazing how much you take simple things for swallowing and feeding your child. I wish you could have seen me spilling formula all over the place when trying to prime the tubing. And then Nate's tube popped out spilling even more fluid. Of course, this is also the exact moment my toddlers decided to act up and the dog tried to escape out the door. It all feels very overwhelming right now but I'm sure we'll get the hang of this soon and this will become our new normal.


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